Quote:
Originally Posted by Chris Parson
i have a rare condition called Bullous Pemphigoid. try doing a google image search to see what it looks like.
basically my immune system is attacking my skin. there's no known cause or cure.
standard treatment is to take large doses of prednisone, antibiotics, and niacinamide until the symptoms subside. this worked ok about 7 years ago, but the symptoms are back. my hand is blistering up and i'm back on the prednisone. this works to temporarily alleviate the symptoms, but when i try to ween off, the blistering comes right back. if it goes untreated, my whole body will continue blistering until i just decompose completely and die. it has gotten really advanced before and it is very painful.
if i keep taking these drugs, i'm going to die too.
i'm presently trying this alternative treatment that involves taking massive doses of seasalt and vitamin C. the theory is that autoimmune disorders are caused by some kind of hidden bacteria and that the salt/c combo will make my body a toxic environment for this bacteria and i'll get better.
i've been doing this for a week or so and have not seen any improvement. today my fingers started blistering up again, and my spirits are really low.
if any of you have any ideas of how to help, i'd really appreciate it. i've been seeking out some kind of shaman who can help me find some answers but have not yet found one.
good vibes/prayers would also be appreciated.
i'm not ready to die.
thanks y'all.
-chris
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Hey Chris, i heard a guy that had some same condition and he consulted a doctor, the doctor said he will give him a treatment where he injected him with a not so hostile bacteria so the immune system would focus and target the bacteria and not the body, after it got done, he started feeling better, but the only problem is, you will have to be injected with a bacteria periodically like a month or two so the symptoms don't come back. You shouldn't worry, the guy (even though with a bacteria inside him) managed to do everyday routine things, go out and even run and stuff. Im not so sure how far you are with ur condition but i think it might work. But you need to consult a doctor for that.
Anyway as another idea, have you considered an alternative healing method? There are a few hospitals that inquire doctors who use healing energy sort of thing, and iv'e heard people even get cured of cancer with that method, if cancer can be beaten i think you have good chances too. Again im not living in the US so i don't know exactly which hospital has these kinds of doctors but you can look up the internet, i think you will find info on that. My best wishes to you and i hope you recover soon.
I really hope what i posted would help you in some way
Be better and take care
~~Alex~~