hello Chris...
my heart and prayers really go out to you ..
I'm also battling a serious (auto-immune) illness... not unrelated to what you are going through Chris.. and I really understand how incredibly difficult (and sometimes frightening) it can be when our bodies start to go 'out of control'... especially when conventional medicine has little answers besides pumping us full of steroids, painkillers and other nasties... which then cause their own effects on us too... so my thoughts really are with you...
I had a look around the internet, to see what I could find, as I'm sure you have done already.. and there are lots of loving, helpful suggestions from others here too.. but I know it can feel overwhelming to chose/know which type of treatment/direction/course to take.. especially when there is a sense of feeling 'short on time' ... and the illness is making us feel grim...
I'm not sure what your views on this might be.. but I think it could be of real help for you to ask/pray for guidance/help/healing, from either your Gaurdian Angel/God/A loved one in Spirit/Higher Self or whatever you feel most comfortable with.. but do ask for their assistance.... there are many beautiful and healing beings who are not walking this Earth who are very close and wanting to heal and help us.. if you can, and are open to this, find a local Spiritualist Church, an authentic one (i.e. nationally recognised and regulated), as they always have at least a couple of very gifted Spiritual Healers who they can arrange to see you... if you wish... just an extra solution to consider.
Also, apart from all the very sensible dietary advice already given.. you might like to check this out... have never used it myself but it could be of help for you??
http://www.pemitin.com/about.htm?gcl...FQEPuwod9T31Ow
oh and finally, have they been doing your bloods regularly, to check for basic vitamin/mineral deficiencies? This is really worth checking out, as although they might not solve the while problem, once the immune system starts going potty, our body can start to do very weird things with our Vit/Min levels.. so they're worth getting checked every month or so.
I sincerely wish you a wealth of healing, and hey.. even when moments get hard to bear.. try to keep your spirits up and keep strong... I find a good regular dose of humour helps me... sometimes we can't alter what life sends our way, but we can alter how we feel about it... sometimes helps us to cope better and find comfort even in pain
You will stay in my prayers
Peaceful blessings